Thursday, January 22, 2015

Vivien's Heart Surgery Date Moved up to this Monday -Call to Prayer - By Todd

Our Sweetheart!
As of today, Vivien is 4 1/2 mos and 9 lbs 4 oz and finally in some 0-3 month clothes! She is continuing to beat the odds of her diagnosis and has proven to be a fighter!

We just got a call yesterday and Children's needs to move her surgery date up to this Monday, January 26 at appx 8:00am due to scheduling conflicts.  They will be repairing her VSD (hole in her heart) and overriding aorta.  Every surgery has it's risk, especially a heart surgery but the doctors are confident that the process will go smoothly.  While we have some nervousness, we are grateful for skilled doctors and even more confident that God has His hand on Vivien and He is trustworthy.

We just wanted to thank all of you for the help and encouragement you've given this past year. While Molly and I have been stretched in so many different areas, we couldn't imagine what this time would be like without all the prayers and support of family and friends. Thanks for the kind and encouraging words. Thanks for having hope and cheering Vivien on.

Tonight (Thursday), the elders from our new church - Highlands Community Church are coming to pray over and anoint Vivien at our house. This Sunday, 1/25, we'll be having a day of prayer and fasting for Vivien and her surgery and we'd love to have you join us if you feel called. We know that no matter what lays ahead, God has been faithful and will continue to give grace. Please continue to pray for wisdom and care in the surgery and complete healing of her heart.

There have been a few times on this journey when we didn't think God was at work or feel He was near. Looking back, it's obvious His grace has been on us. While it's not the journey we wished for, we wouldn't have it any other way. We recently sung a song at church, that really echoed how we feel right now.

Never Once

Standing on this mountaintop
Looking just how far we've come
Knowing that for every step
You were with us
Kneeling on this battle ground
Seeing just how much Youve done
Knowing every victory
Was Your power in us

Scars and struggles on the way
But with joy our hearts can say
Yes, our hearts can say

Never once did we ever walk alone
Never once did You leave us on our own
You are faithful, God, You are faithful

Kneeling on this battle ground
Seeing just how much Youve done
Knowing every victory
Was Your power in us

Scars and struggles on the way
But with joy our hearts can say
Yes, our hearts can say

Never once did we ever walk alone
Never once did You leave us on our own
You are faithful, God, You are faithful
You are faithful, God, You are faithful


We have cheeks!
9 pounds!

Physical therapy

On her way to the doctors yesterday

Lastly - Go hawks!
We won NFC Championships!

2 comments:

Unknown said...

Beautiful update Todd. We have you all in our prayers and will keep you there throughout these next few weeks.

I just love these photos of Vivien. She looks great. She radiates from the inside out. And I just know how much she lights up your lives!

Love to you all,
Terre (mom to Krissy Trisomy 18 Age 14)

Leah Potter said...

My mom sent me to your site. My sister has just recently had a baby with Trisomy 18. My family and my church prayed for months for a miracle for my niece. And God answered, as I knew He would. God is the one who has the final say here. Your beautiful baby and your family will be covered in prayer, from my end. I am looking forward to the positive update. Blessings!