Tuesday, January 27, 2015

More Good News!

Tuesday, Jan 27 2:00pm
Last night they were able to extubate Vivien! They took the breathing tube out at about 9:30pm and now all she has is a high flow canula with a little oxygen which is much more comfortable for her.  That was not expected to happen until 1-3 days after the surgery and she has done so well.

The other good news is that she is going to actually come out of the ICU and go to the "floor" most likely today.  We were told she'd be in the ICU for 3 days and then move to the floor which is less intense care.  Again she is doing so amazingly well that she is already ready to move to the floor.  We are just continually in awe of how God is answering our prayers with "yes".  We know that He is good and we will praise Him whether our prayers are answered with yes or no, but we are so grateful for How he is answering.  As I write this, they just finished taking out more of her tubes and are preparing to move her.  We also spoke with the surgeon.  We appreciated so much his care and attention to detail and he is very pleased with how well Vivien is doing

Funny story.  In addition to this, we were delighted to hear that our pediatrician received an interesting call from one of the doctors here at Childrens'.  We don't know who it was and don't need to, but apparently the doctor was asking if Vivien had gotten tested for T-18 after she was born.  She looked so healthy and seemed so normal to him that he wanted to make sure that she really did have that extra chromosome diagnosis that she received in the womb.  We have seen the tests and do know that she does have T-18, but it made us smile and to continue to thank God that Vivien is surprising the doctors.

Todd and I were talking today about what we prayed for on the way to the hospital yesterday.  We both realized that as we praying together we each prayed at different times that Vivien would do better than expected, that there would be no complications and that she would heal more quickly than normal.  I remember praying this aloud, but thinking inside about her T-18 diagnosis, wondering if she would actually heal a little slower and thinking of stories we've heard of complications.   I love that we don't have to have perfect faith for God to answer our prayers.  I was thinking again about 2 Chr 15:15 (MSG) - "Anticipating the best, they had sought God, and He showed up, ready to be found."  I had read this yesterday during the surgery.  We prayed for the best and I really anticipated that she would come through well and honestly had a peace with very little anxiety.   But although I was praying aloud that she would do better than expected, I can't say I was anticipating it.  I can't say my faith was that strong.  I love that Jesus takes our mustard seed of faith  in speaking out the words at least, and grows it and answers, proving His faithfulness even when we don't always have faith like we'd like to have!

Again - if Vivien had not done well and the worst happened, we still know that God is good, trustworthy and will redeem all things.  But I am so grateful for how He strengthens our faith no matter what, and takes our little mustard seeds and grows them.

We also know that He is listening to the hundreds if not thousands of people praying for her.  We were humbled and overwhelmed by all of the facebook shares, comments and the visits to our blog.  We have been incredibly loved and supported and we know that God hears the prayers of His people.

In other news, Vivien is looking forward to celebrating the Seahawks win this coming Sunday. ;-)  I ordered a little Seahawks patch that should arrive by Saturday to put on a hat or onesie as she doesn't have any Seahawks gear.  Russell Wilson usually visits Childrens' Hospital on Tuesdays.  Most likely he won't be visiting right after the Superbowl, but we can always hope right?  We love the Seahawks, not just because of their wins, but because of their heart.  After their win last Sunday a friend of mine wrote a beautiful blogpost on the Seahawks, the Gospel and Grace here.  Go Hawks!

We will continue to update on Vivien here and on Facebook.  Thank you for your continued prayers. We are excited that we will get to hold her this afternoon (more pictures coming!) as well as move to the floor.  Praise Him with us for all that He is doing for Vivien!  We are so grateful for what He has done and continue to praise Him for holding her life in His hands.

4 comments:

Marsha said...

Praise God! She is so beautiful and reminds me of my FT-18 grandbaby Liily who's with Jesus. I love seeing Vivian thrive and amaze the medical profession. God is good!

Melissa said...

I found your blog on Facebook last night via a friend from church. Praying with you for your beautiful Vivian. So happy to hear that today was a good day for her and that she's recovering ahead of schedule.

My family lives in SW Washington and my son is currently in treatment for leukemia in Portland at one of the children's hospitals. When he learned that Russell Wilson visits Seattle Children's on Tuesday (his chemo day), he asked if he could go up to Seattle for one of his treatments. Mr. Wilson has such an amazing heart for the Lord and it's a breath of fresh air in a world full of so much trash.

Will continue to pray for Vivian and your family. Thank you for sharing her story and giving hope and encouragement to other families. Life is so precious and until we have difficulty come upon us, it's often hard to remember. Our days are all ordained by the Lord and each should be counted precious whether we get one or one million.

Kaelynn Judd said...

I'm so glad that she is doing well! She has been in my thoughts and prayer constantly these past few days! Glory to God for all that He is doing through her!

Leah Potter said...

So thrilled! What a mighty God we serve! Beautiful Vivian, God's princess. Thank You Jesus!